Viewing posts from March, 2008
We had a fantastic day on Wednesday celebrating James's birthday. His bedroom and the lounge got decorated the night before with streamers and balloons; he had breakfast in bed (and we all joined him); and I took the day off so we could all have fun together.
We went to Aunty Elle for morning tea, then off to the Scratch Patch at the Waterfront where we all had lots of fun collecting semi-precious stones.
Fish and chips for lunch (although James didn't want any) and then James and Charis were both so tired they fell asleep in the car. We went to century city, put Charis in her pram and James in a trolley (with a blanket!) and let them both sleep while we had a drink together (a nice unexpected treat!)
Then we went to the Science Center which is basically a gigantic play area so that although little kids may not appreciate everything that's being taught through the activities they can certainly have fun!
Visited the Loizides on the way home and then had Gramps and Granny round for pizza in the evening - and James even ordered it over the phone! (With some coaching from mum...)
There's definitely something special about taking time out to celebrate!
It's quite an adjustment... James being on maintenance means he's freer to do things with other people, eat more food, etc...
Last weekend was amazing - going to church for the first time together as a family - not being able to go has been hard and it was amazing being there. We also went to the aquarium, visited a few friends, and went to one of his friend's birthday parties - quite a gear shift!
A small but very helpful victory for us - for the last few months James hasn't wanted to swallow tablets so we've had to crush them up and mix them with his vitamin syrup. His steroids he has to take (for 5 days a month now) are very bitter and he hated the taste...