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Back from holiday

We got back on Saturday from a wonderful holiday in the Eastern Cape. We really benefited from having a concentrated chunk of time together as a family... and we got to see lots of animals, which we loved!

More details from Prof

After yesterday's good news that James's bone marrow has been given the all clear, we had an appointment with the Prof who is in charge of James's treatment where we were able to hear more fully about the bone marrow test and analysis. We appreciated that both Prof and James's pediatrician seem to understand how difficult this is for parents emotionally!

Relief - James is still clear

James the superhero

Today we heard from James's paediatrician that she got the final report on his bone marrow test - and he's totally clear! The cells that they saw on the previous test turn out under closer scrutiny to be Haematagones, apparently also known as Haemocytoblasts - basically they're immature cells, but they're not cancerous, so he's officially still 100% in remission! They're also not caused by a virus. What a relief it was to hear that news! We'll have our appointment with the Prof tomorrow where we'll be able to discover for more details, but it was nice not to have to wait till then!

Bone Marrow test yesterday

Getting ready for bone marrow test...

James had his bone marrow test yesterday. He was incredible bouncy just before hand, but got knocked out pretty quickly by the anaesthetic!

Extra Bone Marrow Test for James tomorrow

Picture of James and Charis with Granny and Granddad and the boats he made

Last week, James had a bone marrow biopsy, which he has every three months. The hospital called us last Friday to say that they had seen something funny in his bone marrow, from the biopsy and they would like to do more tests. So, on Tuesday he had tests on him for TB of the Bone Marrow, CMV virus and Glandular Fever. The tests have all come back negative and so the doctors have said that they want to do a bigger bone marrow biopsy than usual on James to see what is going on with him. It is tomorrow morning at 8am. We would love some prayer - for peace and grace and healing. We have been trying not to react too much until we know for sure what is going on.

Liver results

We went to see the gastro-enterologist today as planned to check out why James's liver enzyme levels were high. He said that the most likely reason is that some of the drugs he's on can gradually produce toxicity in the liver over protracted periods of time. This can eventually produce liver scarring etc which is not reversible, but if caught early enough, they can sometimes switch the drugs etc so that it doesn't have a permanent effect.

Bone Marrow results

James had his Bone Marrow Biopsy (which happens routinely every 3 months) and Lumbar Puncture (and monthly intravenous chemo!) last week. The operation went smoothly, although he felt a lot more queasy than usual and ended up throwing up all over the car. David had to go straight off to conduct an interview after dropping us at home ... so it made it interesting for him with the state of the car!!!!) We got the results on Tuesday, telling us that he is still clear from leukemia! The Prof (his doctor in charge of his treatment) explained to us that we are exactly where you should be ... but you've got a long road left to walk! These were honest, but sobering words for us and reminded us of the continued need for prayer in many dimensions! We thank God that He is our strong foundation, never shifting or 'wobbled' by events or difficult happenings!

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